| THE CHILD
WITH A LONG-TERM ILLNESS
The child with a serious medical illness is at risk
for developing associated emotional problems. Unlike a child with a
temporary sickness such as the flu, the child with a chronic illness
must cope with knowing that the disease is here to stay and may even get
worse. Child and adolescent psychiatrists point out that almost all of
these children initially refuse to believe they are ill, and later feel
guilt and anger.
The young child, unable to understand why the sickness
has occurred, may assume it is a punishment for being "bad."
He or she may become angry with parents and doctors for not being able
to cure the illness. The youngster may react strongly against pampering,
teasing, or other attention. Uncomfortable treatments, and restrictions
in diet and activity may make the child bitter and withdrawn. To help
your child deal with the disease you need to give them honest, accurate,
and age appropriate information to help them understand.
A teenager with a long-term illness may feel pulled in
opposite directions. On the one hand, he or she must take care of the
physical problem, requiring dependence on parents and doctors. On the
other hand, the adolescent wants to become independent and join his or
her friends in various activities. When a teenager with a long-term
illness tries to decrease or stop taking the prescribed medication
without consulting with the physician, this often shows a normal
adolescent desire to take charge of one's own body.
Chronic illness may cause school problems, including
avoidance of school. This can increase the child's loneliness and
feeling of being different from other youngsters. It is important for
parents to help a child maintain as normal a routine as possible. They
should respond not only to the child's illness, but to the childs
strengths. Child and adolescent psychiatrists know that if isolated or
overprotected, the child may not learn to socialize or may have
difficulty separating from parents when it is time to be involved in
school or other activities outside the home. It is often helpful for the
child to be in contact with others who have successfully adjusted to
living with a chronic illness.
In their prolonged periods of hospitalization and/or
rest at home, children may develop excellence in a hobby or a special
talent such as art, model airplanes, or a foreign language. They may
also try to learn as much about their illness as possible. Such
activities are emotionally healthy and should be encouraged.
Children
with long-term illnesses are often treated by a team of medical
specialists. This team often includes a child and adolescent
psychiatrist, who can help the child and family develop emotionally
healthy ways of living with the disease and its effects.
Information
provided by:
American Academy of Child/Adolescent Psychiatry
http://www.aacap.org
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